Zayden has been bursting with energy these past two days. Last night, he was unstoppable—his energy levels felt like someone had flipped a switch. He kicked off his evening by joyfully jabbering with his mommy and daddy on their first video chat. Then, he charmed his GG in Florida with another cheerful call, followed by a lively chat with his Grampa and GG in North Carolina. Zayden had plenty of stories to share, impressing everyone with his nonstop chatter and cheeky habit of sticking out his tongue mid-conversation. It was pure entertainment!
Every time Zayden does something new, I'm amazed—especially when it's something the doctors didn't think he could do. He's been pushing his vocal boundaries, making all kinds of sounds, even with his trach in and its cuff fully inflated with 2 ml of sterile water. So much for the doctors who doubted he'd vocalize while using a trach! We all swore we heard him saying "hey," "hi," and even a playful "ugh." His antics had us giggling nonstop. While chatting away, he showed off his growing coordination by picking up his rattle balls—one in each hand—and passing them back and forth. He even held one ball with both hands at his midline, a skill he’s been working hard to master. By midnight, he finally ran out of steam and fell asleep... but true to form, his rest didn’t last long. By 4:20 a.m., Zayden was back to jabbering happily!
The day continued at full speed, with Zayden keeping busy at home while we juggled work across four different counties. By late afternoon, though, the exhaustion caught up with him. He grew cranky and fussy, fighting the sleep he so badly needed. Rubbing his eyes and crying, he suddenly let out a high-pitched scream. His entire body trembled, his eyes rolled back, and he passed out. I watched in panic as his lips began to tint blue, his oxygen levels dipped, and his heart rate dropped. Thankfully, the episode lasted only a few seconds. His vitals bounced back, and he refocused on me with his usual bright eyes—but those moments felt like an eternity. My mind raced, bracing for the possibility of performing CPR or facing a seizure diagnosis. After consulting his neurologist, I was relieved to hear that it was likely just Zayden holding his breath. That reassurance helped ease my fears.
Now, as the day winds down, Zayden is still awake but calmer and content. He’s happy, and that’s all that matters. As for this Grammie, it’s time to wrap up this post and head to bed for some much-needed rest. Goodnight!
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