Welcome to Zayden's Journey with Myotonic Dystrophy Type 1

Join us on our family’s heartfelt journey as we navigate the challenges and celebrate the triumphs of living with Congenital Myotonic Dystrophy Type 1, through Zayden's inspiring story. Together, let's raise awareness, foster understanding, and advocate for the vital changes needed to improve the lives of those impacted by this rare genetic disorder—affecting 1 in every 8,000 births—and their families who face its life-changing effects every day.

Yet Another Insurance Blowoff

18 Apr 2025 21:13

Stranger Transformed into a Precious Family Member

17 Apr 2025 10:13

I am so cute and I take really good pictures!!!!

15 Apr 2025 07:45

Frustrations part two

13 Apr 2025 14:20

Be a Responsible Parent !!!!!!

6 Apr 2025 19:03

Frustrations Never Stop Part 1

29 Mar 2025 10:38

I caught Grammie!!!!

27 Mar 2025 16:54

Home Bound and Down

24 Mar 2025 19:21

Water is our theme this week

15 Mar 2025 17:02

The boy gave Grammie a fright

14 Mar 2025 23:25

Another day down

5 Mar 2025 21:08

Started a GoFundMe to help Zayden on his Journey

2 Mar 2025 16:21

https://www.gofundme.com/f/support-zaydens-journey-with-myotonic-dystrophy

About us

Welcome to our blog, where we share Zayden's personal journey with Myotonic Dystrophy Type 1. Our goal is to provide meaningful insights, resources, and support for individuals and families navigating life with this rare genetic disorder, which affects approximately 1 in 8,000 births. Together, we aim to foster a compassionate community, raise awareness, and advocate for increased research and understanding.